Resources > Blog > September 27, 2022

Resource Roundup: Equity in Building Community… Where to Start? 

As we welcome Resource Roundups back into our regular rotation on the Healthy Parkinson’s Communities blog, we invite you to reflect and learn with us. Many within the Parkinson’s community have recognized the diversity (racial, socioeconomic, age, gender, etc.) of people diagnosed with Parkinson’s does not reflect the diversity of the greater community.  

Many groups, therefore, have begun work or expressed the desire to begin work to address this challenge. While we are eager to create a solution, we must first learn about the systems that don’t serve everyone, and what language is used to build equitable systems. Here are some of the resources we’ve come across this month: 

Resources to learn more about equity, bias, and how to elevate marginalized voices 

Self-Paced Learning & Education 

  • Equity and Equality from the Rising Tide Center  
    • This short video explains the difference between equity and equality as a part of University of Maine’s Rising Tide Center and its 5-Minute Professional Development Series. 
  • Indicators from National Equity Atlas 
    • National Equity Atlas indicators track how communities are doing on key measures of inclusive prosperity. Their indicators track change over time, are comparable across geographies, and are disaggregated by race and other demographics as much as possible. 
  • Glossary from Racial Equity Tools 
    • Words and their multiple uses reflect the tremendous diversity that characterizes our society. It is essential to achieve some degree of shared understanding, particularly when using the most common terms. In this way, the quality of dialogue and discourse on race can be enhanced. 
  • 3 Things to Know: Cultural Humility from the Hogg Foundation for Mental Health 
    • This post is part of the Hogg Foundation’s “3 Things to Know” blog series, which explains concepts influencing community mental health and our grantmaking. 
  • Unpacking the Invisible Knapsack by Peggy McIntosh 
    • This article outlines the author’s experience in navigating white privilege and ways to actively recognize the unwritten ways that racism and unconscious biases shape how we are perceived by others. A great read for reflection. 
  • A Gardener’s Tale – Camara Jones 

Elevating Marginalized Voices 

  • Nonprofits Must Listen with Their Ears, Not with Their Eyes from SSIR  
    • Social sector leaders who “speak for” marginalized groups engage in harmful behavior that excludes marginalized communities from making decisions that affect their lives. It’s hard to imagine a future that is liberatory and equitable if organizations only listen with their eyes and fail to hear the people who have the solutions—but not the resources—to solve their own problems. 
  • Learn more about this organization: PhotoVoice 
    • PhotoVoice believes everybody should have the opportunity to represent themselves and tell their own story. They work globally on projects and activities which combine ethical photography and community participation to help deliver positive social change. 

Hispanic-Specific Resources for Hispanic Heritage Month 

Every month we will share a roundup of resources we have found helpful from other community organizers to spread knowledge and minimize the duplication of informational tools. Next month, we will start a series of Resource Roundups focused on how to enhance your toolbox as a community organizer and facilitator.  

Stay up to date with tools and resources shared through the Healthy Parkinson’s Communities initiative by signing up for our Newsletter.  

Do you have questions or ideas for future Resource Roundups? Email us at