In 2021, PD Movers invited a group of Black and African American individuals with Parkinson’s and their care partners to develop an educational guide for Parkinson’s designed specifically for the Black and African American community. This group of “movers” includes doctors, researchers, and teachers from Columbia University Irving Medical Center (CUIMC) and Teachers College, Columbia University. What came from those initial gatherings is a beautiful storybook filled with narratives of African American and Black individuals and care partners who are living and thriving with Parkinson’s.
In 2023, the Davis Phinney Foundation was able to do a three part webinar series highlighting this resource and provided a small community grant to help the PD Movers team print more books and continue their outreach.